Deborah Carney

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Looking Back as I Turn 60

November 19, 2016

I turn 60 in 11 days. On my 50th birthday I sat in a restaurant in Las Vegas with a friend and his son. Friend didn’t understand why I wanted to go out for that particular birthday and then it hit him. I lived alone at the time, having moved to Las Vegas after a few tumultuous years of losing two sons and the life I knew. I had gone from being the gregarious hostess of all parties and lover of fun to living on the opposite coast of where I lived the bulk of my life. I had few local friends. I didn’t care about that. I cared about living far from where the pain was. I didn’t want to live where there were constant reminders of the lives lost. My Dad, my Sister, my sons Chris and Dan.

I wanted a fresh start with no daily reminders and driving by places we lived and loved. So when I was 49 I moved to California, then Las Vegas. But I did miss something from the East. My daughter, grandson and my cats. The cats had not come with me because at first there wasn’t really a way to get them there and I was living in a hotel. I moved rather quickly when Chris died. I got on a plane after his funeral and never went back. My daughter Liz took care of the cats.

I had moved to California for a job. My dream job. I loved it. Then the direction of the company changed, Chris died and I said enough. And I left California the week after the moving truck from New York had finally showed up with some of my stuff. I repacked and moved to Las Vegas. A beautiful home overlooking the valley where I could see both the mountains and the lights of the strip. When you live in Las Vegas area you don’t go to the strip often, but you love looking at it. It makes you feel connected to people. You know there is a whole world of people – mostly visitors passing through – but people nonetheless. You can go and be among people without having to actually interact or be around them long term. It was a nice, anonymous way to live. For awhile.

Liz and Alec came to visit. They fell in love with the area. It was time for them to move as well. They came a few months later, with my cats. The cats finally were living with me again.

In the meantime I met a man and fell in love. He lived in NYC but loved Las Vegas and visited frequently. We were friends from an online community, we met in person at a conference, had a long distance relationship and it was totally awesome. Then the landlord visited one day with the news that he had to sell a couple of his houses and the one I lived in was the nicest with the best view so it was going to be sold first.

My time on the west coast and in the Nevada desert was about to come to an end. I moved to NYC to live with Vinny, driving cross country in August 2008 with a dozen or so cats. It made sense since he owned a house for me to move there and I wouldn’t have to worry about not having a place for my babies and have to leave a house because it was being sold. I knew someday we would move back west because he liked it out there too. But he had a home so that is where we went.

Many of my cats by now were seniors and I hadn’t gotten any “new” ones in many years. I have always had cats. Once I was divorced we always seemed to have 7 or 8. Then my son and I bred Maine Coons for a few years and we had many more. Life interrupted again in 2001 with 9/11 and I had to go live in a dorm with one of my sons for a year. Liz took care of most of our cats. We placed a number of them with other breeders and friends. Then Dan died and Chris and I moved into an apartment in Astoria Queens and we got our cats back. But then the landlords there decided they needed to rent the apartment to a family member. We moved back to Rochester to live temporarily with Chris’ dad. Chris and I got a trailer in a lovely trailer park and we had a home for ourselves and our cats where we didn’t have to worry about moving again. So I thought. That is when the job offer in California came up. I could work remotely. But I really was liking the warmth of the west coast. I started a long distance commute and decided to move there. Two weeks later Chris died. And when I got on the plane to go back to the west coast I knew I would not be back.

Moving in with Vinny I thought my days of having to rent a place and worry about having my cats with me were over. This was 2008. Over the next couple of years my seniors passed away to go over the Rainbow Bridge and be with Chris. In 2009 Chris’ birthday was coming up and was particularly hard for me. I had looked outside and seen a kitten under a chair in a rainstorm, but where we lived there were a lot of feral cats so that didn’t seem unusual. But this kitten looked at me in a way that I couldn’t forget. A few days later Vinny’s mom said she saw a tiny kitten that looked like it was in trouble around her house. So we put some food in a carrier and when the kitten ran in to eat we locked it in. Poor baby was terrified. She was undernourished and scared and sick. We took her in our house and made a special place for her in the office of our house where she could hide and be safe. Kitten formula, meds, heat and love brought her back to life. She only trusts Vinny and I, she is blind in one eye. As an adult she weighs all of 5 pounds. Her name is Snowflake because she is mostly white with a black back and a white snowflake on her back. We tried many names for her and that was the only name that she responded to. The neighbors called her the invisible cat because as soon as the front door would open she would disappear like a ghost. When we traveled to conferences whoever was house-sitting never got to see her.

In September 2010 it was nearing Dan’s birthday and a neighbor walked up to the house with her husband. She was holding 2 black kittens and he was holding 3 others. They were days old and had been abandoned in the neighbor’s yard. They brought them to us because they knew I could help since I raised cats in the past. We didn’t intend to keep any of them, the neighbor planned to take one or two and others would take them as well. Something to note is that in that neighborhood most people had indoor/outdoor cats. I have never had outdoor cats in my adult life. Watching cats get hit by cars and busses made me realize that my babies needed to be safe indoors with me. Not roaming the streets.

The kittens – known collectively as the babies – did well once they were cleaned up and medicated. Their eyes had all been infected and they were covered in fleas. Daily baths and hand feeding had all but one doing well. The littlest girl was struggling. After she would eat I would hand her to Vinny and she would sit on his shoulder with a towel or blanket to keep her warm. We almost lost her more than once but she was a fighter and she made it. To this day she demands “ups” and runs up Vinny’s arm to his shoulder. We call “Babies, babies” and they all come running.

There is one issue with them. They don’t know they are cats. They don’t fall like cats, you can’t even put them down on the floor without them landing wrong. They imprinted on us. They could not go to the neighbors that would have them be indoor/outdoor cats because they did not know how to act outside. They have no cat instincts. The neighbor that brought them to us took one to her house for a visit and when it came back a couple hours later it was so happy to be home and was terrified over being there.

But it is ok since we have our own house and no one cares if I have 5 more babies. Right?

Until October 2012. Hurricane Sandy. We expected a couple of feet of water in the house. We put everything up on desks and tables. We put the cats in carriers and were going to leave them in our office on a desk. We were going to be upstairs at a neighbors house. Our house was one story. I had taken some important things up to the neighbors, computer hard drives, cameras, a little food and some jackets. The water started coming. We made the decision the cats needed to not stay in our office. We quickly moved them across to the neighbor’s house. As I handed the last carrier to Vinny to take upstairs I turned to close the door and the wind rushed in and fought me and the water started flooding hard. I barely got the door closed. It was a surreal “movie moment” where you see the actors battling the elements. Only it was real. And we watched from the neighbor’s windows as our house went under water.

I’m writing this all today because it is the anniversary of me arriving in Arizona after a cross country drive to a rental home. Four years ago we lost everything. We lost everything in our home. We lost the home itself. Me and my cats, we had done this before. Except for Snowflake and the Kittens. But they trusted me completely and knew that all would be ok. Even sitting in a car in carriers for 5 days they knew it would be ok.

Since November 19, 2012 we have had to move 4 times. Not because of the cats. Because each time the landlords decided to sell the house we were in. I have begun to wonder what I did to the Universe to not be able to stay in a house for more than a couple of years. I lived in NYC for 4 years and 3 months. That was the longest I lived anywhere since 2001 and 9/11.

And now I thought I found a beautiful home to rent in an area I love with a landlord that loves animals. Alas that is not to be. I moved in, I bought new furniture while Vinny was in NYC dealing with more house stuff back there. If I wanted to we can’t move back to NYC yet. Probably not for at least another 8 to 12 months. I went to pay the landlord additional pet deposits and she decided that I have too many cats and cannot stay. Or I can stay here and give my babies away.

I am almost 60 and I do not have a home, and if I want a home I cannot have the animals that have kept me sane and that love me unconditionally. I will not break their trust. I won’t get any more animals but those that I have need to stay.

This is not a choice I should have to make at this age. At this point in my life. I am good to people. I don’t abandon people or animals. I love deeply and appreciate the life I have.

So on November 19, 2016 I again need to look for a place to live because I will not compromise and allow someone to dictate if I am allowed to love my babies and keep them with me. I will compromise for a couple of months and have “the babies” live with someone while I hunt for a new place to be. And that is all I want. A place to just be. And a landlord that won’t sell the house out from under me while I get things together to buy my own or until we have a house to move back to in NYC.

For those of you that have followed my journey from the days after losing Dan until now, you know how much the west has healed me, how much moving to Arizona has been good for me. And you know my love for animals and nature.

I have to trust that this is where I need to be and that at some point the Universe will let me be and stop tossing me from place to place. I’m going to be 60. I want to “be”.

In 45 years I lived in 4 homes. In the last 14 I have lived in more than I care to count. I don’t mind being a nomad, I do mind being told how to live when my life doesn’t harm anyone.



Filed Under: Cats, Memoir, My Children, My Family, My Work

Dear “Me”

September 10, 2016

Dan hand wrote this letter to himself sometime around late 2000/early 2001. He was 19.

Dear Me:

Life is about intelligence, about survival, and about being fun. First you have to do what you need to. Then you need to do what makes sense. Then you have to do what’s most fun.

Society likes to put a lot of limits on the world. Society likes to dictate how things “should” be. Usually society’s dictates don’t really make sense.

Kids aren’t stupid, they know what you teach them. If they don’t know something, teach them. They’re people just like you, they have brains just like you, they can understand concepts just like you.

There isn’t a set way people are supposed to act. Often people act irrationally. Often there’s more than one rational response to a situation. There are wrong ways to act, but there are no single right ones.

Originality is a key to a fluid world. Without new ideas, new reactions, the world stagnates. It’s my goal to make people think, to make people feel, to make people see past societal stagnation. The question “Why?” holds the world in its letters. It’s not wrong to ask, or to demand, an answer.

Pointless rules just add hardship to a world that’s hard to live in to begin with. If something doesn’t make sense, ask when and why it did. Decide if the answer still holds today. Because reason and common sense will change over time. The world needs to be willing to change. People need to have the courage to change it.

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Filed Under: From Dan, My Children

The Why of it All

August 18, 2016

I just read a post about being kind no matter what. And it triggered something in me, not sure why. But I am compelled to share this.

I started Affiliate Marketing so I could make money and stay home and care for my sons.

I started selling designs via CafePress back in the day for the same reason.

I started Affiliate Managing to help people make money. Both the merchants AND the affiliates.

I started NightFire Publications to honor my son Daniel and his writing – it was actually NightFire Productions first because we were going to make movies from his scripts.

I started BookGoodies to help authors get their books discovered AND to help authors navigate the waters of becoming self published.

My goal in life is to help people. The ways may have changed but the goal is still the same. Part of helping is through education.

My son Dan accomplished so much in his 21 years and he emphasized that age doesn’t matter. He wrote a novel when he was 10 and another when he was 14, movies and plays from age 16. Still getting them out in the world even though he died 14 years ago.

My other goal in life is to at least publish his writing, if not get a movie produced. Because his writing had a message that people need to hear.

Filed Under: My Work

To-Do Needs to Include Wanna-Do

March 12, 2016

In a private Facebook group the Administrator brought up about working on something on your “Wanna-Do” pile instead of your “To-Do” pile today. That got me thinking. My Wanna-Do list is the first list I tackle each day. I have the luxury of being self-employed and therefore I can work around my daily tasks.

I have lost 2 sons, a sister and many others in my life. I lost all my house and 99% of my “stuff” in Hurricane Sandy (I am grateful we lost no people). I have learned the hard way that tomorrow isn’t promised.

I’ve had times in my life where I was seriously depressed and agoraphobic and have had serious health issues.

I take each day as a new slate to create a new reality and do what I “wanna-do” that will make memories for me and my family (I have a daughter and grandson.) I encourage my daughter to do things she can’t really afford because tomorrow isn’t promised. Do what you are driven to do and not what you “have” to do.

I’m not self-indulgent or hurt others. I make enough time for the “have to-do” but I make sure I do the “wanna-do” every day.

Today I have a long to-do list, as I do every day. When you are self employed the to-do list never goes away. But today I will take my camera and go for a long walk. Because daylight hours are for fun in my world and the dark hours are when you “work”.

Unless you are outside gazing at the stars.

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Filed Under: News and Views

Response to Julianna’s Parents

October 30, 2015

Dan-computer-1999The story of Julianna – the child that has been talked into choosing death over life due to having a disability is so wrong on so many levels. I am devastated that this type of attitude STILL exists.

My children choose life over anything. It is what they were taught and how they were raised. They had Spinal Muscular Atrophy and “should” have never reached adulthood. I have stories of hundreds of similar children that should never reached adulthood or lived good lives.

But they did reach adulthood. The did live good lives. My son Dan died in a CAR ACCIDENT – he did not die from SMA.

The idea that a CHILD should be able to choose whether to live or die is so wrong. That child only knows what it’s parents have told it. This child has no clue about what being dead means. Instead she should be celebrating life and be grateful for every day and her PARENTS should be celebrating her life with her as well and supporting her through the pain.

Who – who – who has a perfect life? A life without challenges, a life without health issues. Look around you – who has not dealt with some kind of serious health issue? Who was able to live a life after a devastating diagnosis?

This is not about “right to life” or “right to die” – it is about living your life. At what point do we decide to not allow children with disabilities to continue to live? Are we back in the dark ages? Are we in the cultures that kill girl babies because they are not acceptable to have as children? Are we in a culture that decides who will have quality of life and who won’t?

I was going to stay away from this issue because it HURTS so much that our society still cannot accept that no life is perfect and that those that are different must be removed from our lives.

Yes I support the Right to Die movement – with a LOT of caveats. A FIVE YEAR OLD cannot make the decision to live or die. A five year old with the possibility of a full life that just has some challenges. Her parents said it was selfish to keep her alive – I say it is way more selfish to allow her to decide to die. In their minds they have already buried her. I feel sorry for them and for her. Because her life appears to be full of “poor thing” “she is in pain, we must end this” “if she gets sick again she will die”. LET HER LIVE – help her live. Give her happiness, sing to her, color with her, play with her. Bring her light and happiness. Let her be a child and let her grow.

If she gets really, really sick and cannot be treated and cannot live, at that time let her go. Don’t let her go before you even try to give her a life.

I know of what I speak. I am not a bleeding heart or religious zealot. I lived the life with my children. We lived with positive energy among people that said they needed to be “put in a home”. There are people in our family that gave up on the boys at the time of diagnosis. They outlived their anticipated lifespans. They had surgeries and struggled. They lost other family members to cancer. They had lives. They had challenges. They didn’t want to die.

They choose to live regardless of the difficulties.

Attitude is everything. Julianna’s parents – I beg you to stop treating your daughter like she is dead already. I beg you to not treat her like a family pet that should be put down. I beg you to treat her like a child and love every minute with her – the challenges, the problems, the smiles and kisses. Stop telling her that heaven is better than earth. She needs to be able to understand that she can be a happy person with a life to live. Her parents need to understand that she is a child with a purpose and a life to live. To not treat her illness the next time she is sick because she *might* sink into a vegetative state is playing God. You don’t have that right. In this case I hope that an agency steps in and takes her from you since you don’t want her anyway. She is a burden you don’t want to deal with.

My words sound harsh? They are meant to be. Our society cannot accept this action. Parents cannot have this power over handicapped/disabled children. This is a slippery slope that we cannot add grease to. Will the next family choose to let their child die without treatment for illness because they feel that at some point they will die young anyway?

Shock – be in shock. Do not be complacent. Do not say – it is the right of the parents. Be outraged, be indignant, make it known that this is unacceptable behavior. It is child abuse. It is child neglect. It is wrong. We need to stand up and say THIS IS WRONG.

Filed Under: Disability Advocacy

When Life Gets Unbearable

September 19, 2015

Very few people know the story I am about to share. It was a very dark time in my life. Without Chris and Liz the outcome may have been different.

September 2002, 4 months after Dan died, his first birthday after he died. It was almost too much for me. I put Liz on alert that if she got a call from me she needed to not ask questions and get on a plane from Rochester to NYC to come take care of her brother. Because I was almost at a point where I could no longer tolerate the pain. I told her if she got that call that it meant I was on my way to admit myself to a hospital. I didn’t want to live. But I knew I didn’t want to die. I knew people still needed me. But I was close to not caring.

I did “all the right things” after Dan died. I worked for a doctor’s office and they put me on antidepressants and other medications to help me combat my deep grief. I have a news flash for you. they don’t work. Only time can heal the broken brain and shattered heart. Time and rest and sleep and allowing yourself to grieve. Chris and I got through it. Barely. I had a nervous breakdown but was able to get through it without a hospital stay. I knew what to do if I really wanted to die. I didn’t take any steps towards actually committing suicide. But it was there, in my mind. How could I go on with my life with this much pain in my brain?

I couldn’t make decisions. I didn’t sleep. I would try and give up. Once every couple of days I would sleep for an hour out of sheer exhaustion and then wake up again. I became agoraphobic. I only left the house to get groceries and do laundry, which was right on the same block. Being agoraphobic in NYC – Astoria to be specific – is perfect. You had everything you needed within steps or it could be delivered to your door.

Chris was dealing with his brother’s death in his own way. He was online with friends. He lost himself in the online gaming world of Gemstone. He was a warrior creating spells and mythical creatures to fight the demons.

We got through it. We moved from NYC back to Rochester when my grief wouldn’t allow me to continue to work in a corporate environment and our landlords decided the apartment needed to be used for family. We were paying an unheard of (low) $1250 a month for a first floor, wheelchair accessible *2* bedroom apartment. Once we were told we had to leave, there was nothing at all in all of NYC that was under $3000 a month for even a studio that was wheelchair accessible. I spent 2 months with realtors taking me to inappropriate buildings before we gave up and went back upstate. I was already starting to make money online but not enough to support us in that environment.

After Chris died in 2006 I was already on the West Coast in San Francisco having decided to move there a mere month before he died. I became terrified of drowning. I had nightmares of drowning. I wouldn’t go to the ocean, I wouldn’t take baths, only showers. No drugs this time around, the ones that are supposed to help you almost killed me. Friends on the phone with me for hours is what helped me get through Chris’ death. Everything was accelerated. All the things I did and felt after Dan died happened faster after Chris died. I quit my job and moved to Las Vegas. I lived alone and grieved and tried to define a new life that didn’t include my boys.

Why am I sharing this story? There are so many people out there that are hurting emotionally and physically and they don’t think they can go on. I was there. I got through. I didn’t want to get through at some points. But I did.

No matter what your hurts are, no matter what your physical or emotional pain is, you can get through it and survive and find a new journey for your life. I didn’t believe it was possible. But here I am. Some days are still not great. I try and turn them from sad to celebratory. I try and go on and accomplish what I promised my boys I would. It’s a new journey, it’s a work in progress.

You know what helps? Hummingbirds and Butterflies 🙂

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Filed Under: Grieving

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